SMA Run 2024 is an event co-organized by National Institutes of Health (NIH), Persatuan Pegawai Penyelidik KKM, Kelab NIH and PUSPANITA NIH, collaboration with Majlis Bandaraya Shah Alam (MBSA) in conjunction with Shah Alam Car Free Day. Spinal Muscular Atrophy (SMA) is a rare genetic disease that causes patients to have weakened muscles leading to difficulty in movement. More severe SMA patients experience breathing failure that can cause death if left untreated. Early diagnosis of SMA patients has been shown to reduce disease progression and death.

This program aims to create awareness among the public about rare diseases in general and SMA in particular. It gives the opportunity for the public to get to know and interact with this group of patients and their caretakers. Nevertheless, this program can become a medium to spread the role of NIH in health research for rare diseases to the community while also encouraging the community to adopt a healthy lifestyle through leisure activities. We aim to channel a sum of funds collected through this program to selected charities or patient associations to cater to their activities. We hope from such a program, more research opportunities and collaborations with patient groups can be carried out.

Event Details

All tickets shall subjected for 8% administrative fee. However, the administrative fee will be absorbed by the organizer.

Event Tee and Medal

Route

Prize

Runner's Entitlement

Terms and Conditions

Race Kit:

  • Race kit consists of running tee, drawstring bag, a number bib, safety pins, and race guide (if any).
  • Please bring the printout/screenshot of thee-ticket (QR code). You may appoint a representative to collect your race kit on your behalf.
  • There will be NO distribution of race kit on event day.
  • Strictly NO changes in t-shirt sizes will be allowed after the closing date for registration. RM10 admin fees incur for the request of shirt size change, or category change.
  • Race kit will be available for collection on Saturday, 5th October 2024 and Sunday, 6th October 2024, starting from 9.30am to 3.30pm at National Institutes of Health (Kompleks NIH, Jalan Setia Murni U13/52, Seksyen U13 Setia Alam, 40170 Shah Alam, Selangor.)
  • Please take note that upon closure of the distribution hall on Sunday, 6th October 2024, all the uncollected race kits will be deemed as unwanted and therefore become the property of the organizers. The organizers reserve the right to dispose or redistribute the race kits in any manner deemed appropriate.
  • Race kit will be sent to the registered address ONLY for participant who have selected the category with race kit postage.
  • No late collection of race kits will be entertained.

 

Adult Responsibility:

  • Parents are allowed to register and/or bring along their children age of 12 and below at their own risk. Parents must take full responsibility of their children’s wellbeing pre, during and after SMA RUN 2024.
  • ONLY registered children will be entitled for t-shirt, bib number, finisher medal, certificate and refreshment pack.

 

Registration via online:

  • Everyone needs to register via Online Registration at checkpointspot.asia
  • Any online registration that is not followed with online payment will become invalid registration. Entry forms will only be processed upon receipt of full payment of entry fee.
  • No refund will be made for wrongful or multiple registration or cancellation.
  • The decision of the committee is final when accepting entries. The organizers have the right to refuse an entry without having to disclose a reason.
  • The organizer reserves the right to close entries before the dateline without any notice once the race quota is full.
  • RM10 admin fees incur for the request of shirt size change, or category change

 

Finisher Medal:

Finisher Medals will be distributed at the finish line to all participants. No claims will be entertained thereafter.

 

Finisher Certificate:

All participants will receive their e-certificate via website.

 

Refreshment Pack:

Refreshment pack will be distributed at the finish line.

 

General Enquiries:

For enquiries on event details, arrangements & etc.

Phone: 018-3732439 (for whatsapp message only)

 

Registration Closing Date:

Sunday, 31st August 2024 or upon reaching the maximum of 1000 participants of each run categories, whichever comes first.

 

Waiver:

  • The organizers reserve the right to delay the commencement of the race in the event of heavy rain or thunder storm or extreme weather condition. Should the event be cancelled due to circumstances beyond the control of the organizers, the organizer shall not be held responsible for any claims including refund of entry fee made by any individual or parties concerned. The organizer also shall have no further responsibility and/or liability thereafter.
  • Every reasonable precaution will be taken by organizer to ensure participant safety; however, the participants are encouraged to ensure his/her health condition is fit before participating and during the event. The organizers shall be responsible for personal injury or death during or after the race due to gross negligence of the organizers only.
  • The organizer reserves the right to use any photograph, motion pictures, recordings, for any legitimate purpose including commercial advertising and distribution to sponsors.
  • Participants are advised to follow instruction given by traffic personnel for proper parking. The organizers will not be held responsible due to losses suffered in the event of breaking or vandalism to the participant’s vehicles.

Organizer Information

For enquiries on event details, arrangements & etc.

Phone: 018-3732439 (for Whatsapp message only)

 

Social Media Sites

FB: https://www.facebook.com/profile.php?id=61552973267084&mibextid=ZbWKwL
TikTok: http://tiktok.com/@sma_run2024
Instagram: https://www.instagram.com/sma_run_2024/?igsh=MTZjNTU1MjhzaDN2ZA%3D%3D